Erica Thiel
28 year old female interested in writing on subjects included rare diseases including the lysosomal disorders, autism and advocacy.
Involved with the American Pain Foundation in Pain action outreach.
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Involved with the American Pain Foundation in Pain action outreach.
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- Page Views
- 2,239
- Content
- 10
- Fans
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- Contributor since
- 4/23/2009
Education/Experience
Technical College - psychology course-work, social sciences, biologies, etc.Interests
Patient Speaker - Genzyme Pharmaceutical 5/07 and 8/07 as well as 12/09 speaking on living with a rare disease Boston, MA - Patient Speaker Minneapolis, MN Patient Meeting 2005 Co-leader representing WI - American Pain Foundation Action Network 2009Motto
'Life is a Journey, with a Past, Present and Future, but for now all we have is TodayFavorites
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Displaying Results 1 - 10 (of 10) for All Content
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Traditional and Natural Remedies for CirculationRayaud's is a disorder defined by poor circulation, red, white or blue extremities and painful symptoms that are often not well understood and often can be hard to treat.
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Case Management: What is it and Why Should You Care?Case managers coordinate and help streamline care usually in the healthcare setting to help patients deal with insurance, providers, and planning related to care.
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Neurologic Disease in Sanfillipo SyndromeChildren with Sanfillipo Syndrome are missing an essential enzyme needed to breakdown and dispose of long sugar chains in the body called mucopolysaccharides, also known as GAGs.
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Mucopolysaccharidoses (MPS): Pain Care ChoicesBecause MPS affects the joints, nerves and muscles, pain care is a vital part of daily living.
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Hurlers Syndrome: Brinley Craig is Fighting for His Life, Fighting the Rarest of DisordersHurlers Syndrome can often be treated if it is diagnosed by the age of 2 with a bone marrow or cord blood transplant, this is the story of one such special boy.
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Autism Spectrum Disorders and Treatment OptionsLearning of an diagnosis in your child can be devastating and Autism with it's hidden secrets and lack of understand of it can be confusing. Understanding your choices is vital to success for your child.
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Living with a Rare, Genetic DisorderAt the age of 21 I was thrown head first into a completely new and daunting experience managing the very rare disorder for which I had just been diagnosed.
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Power Over Pain Action NetworkWhat do people with pain, caregivers and healthcare providers all have in common? Many have joined together in a grassroots campaign to bring awareness to the under treatment of pain.
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So What is Mucopolysaccharidoses?Mucopolysaccharidoses fall into 7 categories of complex disorderzs affecting virtually all body system, organs and the Brain. Additionally MPS disorder break down into sub-categories of Lysosomal disorders.
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So You Have Skin Cancer? Steps You Must TakeBasal cell carcinoma, Squamous cell and melanoma. Uncomfortable names, common disease. Many people are diagnosed with this and unfortunately this becomes the first time they focus on their overlooked skin.