Lilly Cooper
I am an economic refugee from the US, living in Nicaragua because it is cheap. I have been disabled with myalgic encephalomyelitis, erroneously renamed chronic fatigue syndrome for political reasons by the CDC, since 1989. This neuroimmune disease colors my whole life. I am nearly housebound and require a caretaker in order to survive. I work online as an administrator for a proofreading service. I write fiction.
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- Content
- 4
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- Contributor since
- 12/19/2010
Education/Experience
BS - U of State of NY, Albany, 1982Interests
ME/CFS, ARV drug treatment, politics of health research, disparity in funding research, expat living, Central America, tropical living, TEFL, teaching English as a foreign language, working online, proofreading, reading and writing science fictionMotto
Plenty of people are still dying of diseases which other people do not believe. - Dr.M.N.C. DukesFavorites
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Displaying Results 1 - 4 (of 4) for All Content
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Neurological Disease Misdiagnosed as HysteriaMisdiagnosis of neurological diseases was understandable 45-100 years ago, but the Centers For Disease Control is still doing it. Like polio and MS, both called hysterical illnesses in the past, chronic fatigue syndrome is still stuck in that time warp. -
Antiretroviral Drugs or Not?: Two Doctors with ME/CFS DecideTwo physicians with ME/CFS, one with a rare cancer that is common in ME/CFS, decide to try ART (antiretroviral therapy). -
Are Chronic Fatigue Syndrome Sufferers Patients or Lab Animals?Some say CFS patients shouldn't get antiretroviral treatments because it won't "advance science". Others say it's unethical for a doctor to withhold treatment.
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New Year's Resolution: Contract HIV/AIDSA Satire inspired by Jonathan Swift's 1729 essay: A Modest Proposal, where he suggests the starving Irish eat their children. My Modest Proposal: get AIDS so I can get treatment for CFS since no insurance will pay for CFS treatment.